United Ostomy Associations of America (UOAA)
Support, education, resources and advocacy
www.ostomy.org
1-800-826-0826
​
How to Treat an Ileostomy Blockage
Guide from UOAA including symptoms, at home
treatments and a guide to bring to the ER if needed.
​
5-Day Camp with different location each summer
for ages 11-17
American Society for Gastrointestinal Endoscopy
asge.org
1-866-353-ASGE
Bladder Cancer Advocacy Network - bcan.org
IBD Help Center - 1-888-MY-GUT-PAIN
MeetAnOstomate.com (Join Free)
Online community to get support, make friends or even meet someone special
The J-Pouch Group - j-pouch.org
Online community to meet others with a J-Pouch and ask questions
Friends of Ostomates Worldwide - fowusa.org
info@fowusa.org - 502-909-6669
Non-profit organization providing ostomy supplies and educational resources at no cost to ostomates in need around the world. They accept donations.
Pull-Thru Network - info@pullthrunetwork.org
Information, education, support and advocacy for families, children, teens and adults who are living with the challenges of congenital anorectal, colorectal or urogenital disorders
pullthroughnetwork@gmail.com
309-262-0786
Short Bowel Support - shortbowelsyndrome.com
Support and educational information for patients and caregivers who have Short Bowel Syndrome
Wound Ostomy Continent Nurses Society - wocn.org
1-888-224-9626
Ostomy Connection - ostomyconnection,com
A Hub for Ostomates - Stay connected to the stories and topics that affect the daily lives of ostomates
The Mighty - themighty.com
A digital health community created to empower and connect people facing health challenges and disabilities
Girls with Guts - girlswithguts.org
Empowering women with IBD and ostomies.
Women's retreat, pen pal program, ostomy supply donation and gift baskets for patients.
Ostomy Secrets - ostomysecrets.com
Swimware, underware and skincare for men and women with an ostomy
​
Instagram blog of one of our members chronicling life with an ostomy
m
Online message board community to post questions and give other ostomates support
y
Instagram: @myintestinalfortitude
