United Ostomy Associations of America (UOAA)
Support, education, resources and advocacy
www.ostomy.org
1-800-826-0826
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How to Treat an Ileostomy Blockage
Guide from UOAA including symptoms, at home
treatments and a guide to bring to the ER if needed.
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5-Day Camp with different location each summer
for ages 11-17
American Society for Gastrointestinal Endoscopy
1-866-305-ASGE
Bladder Cancer Advocacy Network
1-888-901-2226
info@bcan.org
Inspire.com
Online message board community to post questions and give other ostomates support
Online community to get support, make friends or even meet someone special
The J-Pouch Group
Online community to meet others with a J-Pouch and ask questions
Friends of Ostomates Worldwide
Non-profit organization providing ostomy supplies and educational resources at no cost to ostomates in need around the world.
Information, education, support and advocacy for families, children, teens and adults who are living with the challenges of congenital anorectal, colorectal or urogenital disorders
pullthroughnetwork@gmail.com
309-262-0786
Short Bowel Support
Support and educational information for patients and caregivers who have Short Bowel Syndrome
Wound Ostomy Continent Nurses Society
1-888-224-9626
Ostomy Connection
Stay connected to the stories and topics that affect the daily lives of ostomates
The Mighty
A digital health community created to empower and connect people facing health challenges and disabilities
Girls with Guts
Empowering women with IBD and ostomies.
Women's retreat, pen pal program, ostomy supply donation and gift baskets for patients.
Ostomy Secrets
Swimware, underware and skincare for men and women with an ostomy
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Instagram blog of one of our members chronicling life with an ostomymy
Instagram: @myintestinalfortitude
